I am going to take the plunge soon and have so many things to ask those who are married and have to deal with PKU. (Or anyone whose partner has it.) Firstly I’d love to hear about how much it affects your life together in general. Thanks in advance for sharing your experiences.

One of the ways PKU affects a marriage is that one person has to be careful of the diet and the other doesn’t.  That can be dealt with a variety of ways.  I think the best way is to find recipes that you both like and can enjoy together, at least part of the time.  Other times, you can prepare food that both can enjoy, but add a meat for the person who does not have PKU.

Thanks for replying. My man is so sweet and supportive. Right now he is saying he’ll follow the diet with me, but I really don’t want that. I like your idea a lot so will have another talk with him about this issue.

Mostly it makes your diet and buying food more difficult which can be stressful with the wrong partner. But with the right one it should be workable..

Jerry I think you are so right. What worries me is that most people have a limit on what they can tolerate. How can I make sure that after one, five, ten or more years my partner is still okay with my restricted diet? Right now he feels uncomfortable eating food that I can’t. (Even though I am okay with that!)